Monica Coenraads’ involvement with Rett syndrome began the day her then-2-year-old daughter was diagnosed with the disorder. A year later, in 1999, she co-founded the Rett Syndrome Research Foundation (RSRF) and held the position of scientific director during the eight years of the foundation’s drive to stimulate scientific interest and research in Rett syndrome. This culminated in the groundbreaking work in 2007 that demonstrated the first global reversal of symptoms in preclinical models of the disorder. Coenraads co-founded the Rett Syndrome Research Trust (RSRT) in late 2007 to pursue the next steps from that milestone. Under her leadership at RSRF and RSRT, $36 million has been raised for research. In 2010 she co-founded the Rett Syndrome Research Trust UK, now called Reverse Rett, and currently serves as a trustee.
Monica Coenraads
Executive Director
Rett Syndrome Research Trust
Explore more from The Transmitter
Autism scientists push back on CDC’s inaccurate vaccine claims
The CDC website now falsely suggests that autism-vaccine research is still an open question, prompting distrust among researchers—some of whom anticipate “more unreliable statements coming from the junta that took over” the agency.
Autism scientists push back on CDC’s inaccurate vaccine claims
The CDC website now falsely suggests that autism-vaccine research is still an open question, prompting distrust among researchers—some of whom anticipate “more unreliable statements coming from the junta that took over” the agency.
Gene replacement therapy normalizes some traits in SYNGAP1 model mice
The first published virus-based gene therapy for SYNGAP1 deletion yields benefits despite the gene’s long length and complexity.
Gene replacement therapy normalizes some traits in SYNGAP1 model mice
The first published virus-based gene therapy for SYNGAP1 deletion yields benefits despite the gene’s long length and complexity.
Does AI understand what it produces? Henk de Regt explores how we might assess understanding in machines and humans
Building on his philosophy of how scientists understand what they work on, de Regt is extending his approach to test understanding in machines.
Does AI understand what it produces? Henk de Regt explores how we might assess understanding in machines and humans
Building on his philosophy of how scientists understand what they work on, de Regt is extending his approach to test understanding in machines.