Amy S.F. Lutz is a historian of medicine at the University of Pennsylvania in Philadelphia, vice president of the National Council on Severe Autism and the parent of a profoundly autistic son, Jonah, 24. She has written about profound autism for many platforms, including The Atlantic, Psychology Today, Spectrum and Slate. Her most recent book is “Chasing the Intact Mind: How the Severely Autistic and Intellectually Disabled Were Excluded From the Debates That Affect Them Most” (2023). She is also the author of “We Walk: Life With Severe Autism” (2020) and “Each Day I Like It Better: Autism, ECT, and the Treatment of Our Most Impaired Children” (2014). She lives outside of Philadelphia with her husband and whichever of her five children happen to be home at the time.
Amy S.F. Lutz
Writer
From this contributor
Building bridges: Collaboration across the autism community
An autistic person and the mother of an autistic child explore partnership in the autism community.
Building bridges: Collaboration across the autism community
Adults with disabilities deserve right to choose where to live
The idea that one residential model is appropriate for the entire spectrum of intellectual and developmental disability is patently absurd.
Adults with disabilities deserve right to choose where to live
Explore more from The Transmitter
Emotion research has a communication conundrum
In 2025, the words we use to describe emotions matter, but their definitions are controversial. Here, I unpack the different positions in this space and the rationales behind them—and I invite 13 experts to chime in.
Emotion research has a communication conundrum
In 2025, the words we use to describe emotions matter, but their definitions are controversial. Here, I unpack the different positions in this space and the rationales behind them—and I invite 13 experts to chime in.
Autism-linked copy number variants always boost autism likelihood
By contrast, varied doses of the same genes decrease or increase the odds of five other conditions, with distinct biological consequences, two new preprints show.
Autism-linked copy number variants always boost autism likelihood
By contrast, varied doses of the same genes decrease or increase the odds of five other conditions, with distinct biological consequences, two new preprints show.
Everything everywhere all at once: Decision-making signals engage entire brain
The findings, gleaned from the most comprehensive map yet of brain activity during decision-making in mice, show that the process is even more distributed than previously thought.
Everything everywhere all at once: Decision-making signals engage entire brain
The findings, gleaned from the most comprehensive map yet of brain activity during decision-making in mice, show that the process is even more distributed than previously thought.