Profound autism

Recent articles

Conference attendees.

Reporter’s notebook: Highlights from INSAR 2026

At the 25th annual meeting of the International Society for Autism Research, scientists, clinicians and self-advocates gathered to discuss topics such as autism genetics and the gap between clinical trials and real-world benefits.

By Diana Kwon
30 April 2026 | 6 min read
A clinician holds a clipboard while someone else sits on a couch.

Expediting clinical trials for profound autism: Q&A with Matthew State

Aligning Research to Impact Autism, a new initiative funded by the Sergey Brin Family Foundation, wants to bring basic science discoveries to the clinic faster.

By Lauren Schenkman
24 April 2025 | 8 min read
Black-and-white research image of brain organoids.

Brain organoid size matches intensity of social problems in autistic people

Overgrown organoids could point to mechanisms underlying profound autism.

By Holly Barker
18 July 2024 | 5 min read
Portrait of Matthew Siegel sitting on a staircase.

Pinning down ‘profound autism’ for reliable research: Q&A with Matthew Siegel

A clear and actionable definition for the term could enhance research and improve care, Matthew Siegel says.

By Katie Moisse
13 June 2024 | 7 min read

Building bridges: Collaboration across the autism community

An autistic person and the mother of an autistic child explore partnership in the autism community.

By Samantha Easter, Amy S.F. Lutz
24 October 2023 | 10 min read
Photograph of a woman in a dim room looking out her window.

Weaponized heterogeneity only harms the most vulnerable autistic people

Focusing on aspects of autistic experience that we all share may lead more quickly to our shared goal of improved outcomes for all autistic people.

By Mary Doherty
17 April 2023 | 8 min read
Lone figure treads a central path that splits into two, surrounded on both sides by an uncertain, shifting landscape in murky colors.

It’s time to embrace ‘profound autism’

My experience at the Autism-Europe International Congress — and as a parent of a child with profound autism — makes me more convinced than ever that we need to bifurcate the diagnosis of ‘autism spectrum disorder’ and add a new diagnosis of ‘profound autism’ to better serve this vulnerable population.

By Alison Singer
27 October 2022 | 8 min read
An abstract "funding mechanism" featuring dollar bills alongside tubes, beakers and wires

New program offers $35K grants to study ‘profound autism’

People who have ‘profound autism’ — those with severe intellectual disability, limited communication abilities or both — tend to be excluded from research. The Autism Science Foundation seeks to change that.

By Peter Hess
18 July 2022 | 5 min read
Illustration shows yellow landscape with blue sections and a lot of trains on paths with kids on the trains, going different directions.

Mapping the futures of autistic children

Researchers can roughly project what autistic children's lives will look like years down the road. But how good is their crystal ball — and what are its benefits?

By Elizabeth Svoboda
14 July 2021 | 18 min read
MRIs show changes over time

Big brain may mark subtype of autism

Autistic boys with large brains in early childhood still have large brains in adolescence, challenging the long-standing idea that brain enlargement in autism is temporary.

By Laura Dattaro
27 November 2020 | 6 min read

Explore more from The Transmitter

Illustration of stacks of papers.

The next unit of science: Is the scientific paper due to be replaced?

Artificial intelligence is pushing scientific publishing to the brink. For a field as sprawling as neuroscience, the crisis may also be an opportunity to finally connect findings across subfields.

By Tim Requarth
11 May 2026 | 11 min read
Neuroscientist Julieta Sztarker holds an open-air teach-in for the general public in Plaza Italia in Buenos Aires.

Funding crisis in Argentina sparks new wave of protests

Two years after the country’s research funding collapsed, scientists are demonstrating against the government’s failure to restore previously cut scholarships and increase salaries as required by a 2025 law.

By Claudia López Lloreda, Natalia Mesa
8 May 2026 | 4 min read
Conceptual image of disjointed communication.

‘Slightly unhinged’ federal autism meeting portends unclear research priorities

The meeting last week sparked concerns about the latest Interagency Autism Coordinating Committee’s ability to perform its core function: developing a strategy to support autism research.

By Daisy Yuhas
7 May 2026 | 5 min read